HAEMACARE is a Project funded for a three-year period (from 2005 to end 2008) by the European Union under the DG SANCO, Public Health Programme.
HAEMACARE focus on population-based epidemiology of the tumours of haematopoietic system (lymphomas, leukaemias, multiple myeloma, myelodisplastic and myeloproliferative syndromes) and relies on the collaboration of European Cancer Registries, pathologists, haematologists and clinicians.
Haematologic malignancies (HMs) constitute a large proportion of adult blood diseases. HMs are often chronic, require repeated treatment cycles and are associated with long-term sequelae.
In recent years, important developments have occurred in diagnosis and treatment of HMs, that are likely to modify the natural history of these diseases, and improve their prognosis in the near future.
Also the clinical classifications of HMs changed accordingly and today are increasingly based on molecular information (cell surface markers, cytogenetics, tumour gene mutations).
Public health planning requires population-based information, which can be provided by Cancer Registries.
The main objective of the Project is to bridge the gap between clinical and population-based registries by increasing the availability and standardization of data on HMs according to the most updated clinical classifications.
Its main aims are:
1) Increasing the standardisation and comparability of population-based Cancer Registries data on Haematological malignancies.
2) Providing updated health indicators (incidence, survival, prevalence) for haematological malignancies compatible with clinical classification
3) Developing indicators of clinical activity on HMs, also using information available in clinical data bases
HAEMACARE is closely related to EUROCARE (European population based study on survival and care of cancer patients) and it will profit, too, from the collaboration with EUROCHIP (European cancer registry indicators project)